Well it's official, I have a demanding and dominating personality.... which probably comes as no surprise to anyone except for me!! Today was my first day at the National Conference for NOCC in Dallas and after a work personality test I learned that I can be a big P-I-A.... Pain in the Amy!!!! So I guess I'm going to have to work on that one.
But the conference is going great and I'm really learning a lot about fundraising, awareness, diseases, dealing with volunteers and about myself. Sometimes it honestly hard to hold back the tears when you think about it and how many people can benefit from knowledge. It makes me want to go door to door and educate people not only on Ovarian Cancer and Sarcoma, but cancer in general. Even though I've gone through everything with Andrew, I am still amazed at the number of people who cannot read their own bodies and tell that something is wrong. You have to be your own advocate and lobby for your health. You knows you best.
Today was also National Rare Disease Day!!! Uplifting Athletes named Jordan Culbreath of Princeton University the 2011 Uplifting Athletes Rare Disease Champion following his inspirational battle with a rare disease and his return to the field. Congratulations Jordan!!!
To read more, check out the article on the Uplifting Athletes website: http://www.upliftingathletes.org/ua-news/jordan-culbreath-named-2011-uplifting-athletes-rare-disease-champion
I'm excited to see what tomorrow brings and hold tight to the thought that maybe one day rare diseases ... and cancer in general .... will be talked about in the past tense. Cancer and Pain, will become, never again.
Raising Awareness for Rare Diseases .....
